Unit 4. How to implement Genetic Counseling sessions

Lesson 4.1. Genetic Counseling Sessions An overview

It aims to explain precisely what the Genetic Counseling (GC) sessions for people with a family history of Neurodegenerative Disorders (ND) are and the main objectives of these sessions. At the end of this module, the users will acquire a set of basic notions on GC and the main goals, who can be a Genetic Counselor, the multidisciplinary team and the difficulties in this job. This Unit will focus on the benefits of the potential negative implications of GC and the motivations and barriers to participating in GC sessions.

Lesson 4.2. Genetic Counseling sessions in practice

The objective of lesson 4.2 is to present the transnational guidelines aimed at professionals performing genetic counselling (GC) and created by the GECONEU project. At the end of this module, the users will acquire a set of basic notions on the proposed protocols to conduct GC, the common tools to assess a patient’s psychological state regarding the process of genetic testing, how to produce the patient’s pedigree and family tree, the basics of risk calculation and the steps of result disclosure and follow-up sessions. 

Lesson 4.3. The use of Telegenetics

It aims to give basic information about Telegenetics services as a new service system and describe the need to enhance and promote Telegenetics as part of remote Genetic Counseling services. At the end of this module, the users will acquire a set of basic notions on the difficulties encountered in reaching GC services and how telegenetic services can overcome these problems. Moreover, detailed information about the issues to be considered in the remote telegenetic service will be addressed. The arrangement of the counseling environment will be described.